Monday, September 29, 2008

Appreciation

Our appreciation goes out to the many who keep apprised of our family through this blog. I know that many of you are reading and watching to stay informed. Many of you have watched the video clip that Ryan composed of family pictures and events. As a result, you have gained a small glimpse into our world. We have stayed relatively secluded in hopes of preventing any unnecessary exposure to illness for Rebecca. As a result of this and of the overwhelming responsibilities in a typical day, we have not stayed as close to many of our dear friends as we would have liked. For those of you whom we have failed to keep in touch with, our apologies to you.

I know that Ryan has shared with you information in reference to Rebecca's seizures. It is difficult to understand how someone so little can be so strong. The seizures come in all different forms. The worst is the one that he described where her head whips so strong that she could have concussions. These can occur up to more than one per minute. This is horrible to watch her experience as she always concludes them with her bottom lip sticking out and looking terribly scared and pathetic. The others range from her eyes jumping to her eyes staring off. She also just has minor jerks to the head. Most people who watch would not know what to make of them if they notice at all. And it is always entertaining to see people's reactions to her as they do not know what to make of her. We are grateful that she does have content moments, especially when she is rolled up in a fetal like position. We often wonder how long she can go on, but she proves to us that she is purely of God and has a strength that can only come from Him. I am certain that the Lord has a greater purpose in mind for Rebecca and am grateful that she belongs to Him. We appreciate all your prayers that God's will may be realized in her. For those who continue to pray, please send a thank you for the blessed doctors who are closest to her who have helped us advocate our wishes for her, even when they go against medical mainstream thought.

For Katherine and Elizabeth, the busy life of school-aged children is here. They are both enjoying their dance class. They are currently enjoying their freedom and comfort with a studio and staff so familiar with them. Thank you to the staff for letting them know how special they are on a regular basis. Elizabeth will begin to venture into the run and reading club at school with her big sister and others "in charge" of her and other Kindergartners. That should be interesting. Elizabeth also had her first soccer game on Saturday. We were very proud of her and how she played. We are also grateful for an enthusiastic and praising coach. It is not often that you come across one that remembers all their names after 1 practice, lets them all play, and praises each by name several times. Lastly, Katherine's piano skills improve every week. It is amazing to think of the progress that she has been able to make with a teacher who is ever patient and kind. I am grateful to all these persons who encourage my children and teach them how to work through frustration to the enjoyment of success.

Ryan, Katherine, Elizabeth, and myself were fortunate enough to have a mini-break to New Orleans while Rebecca was spoiled and loved by Ms. Cathy at home. While daddy worked, the girls and I enjoyed Cafe DuMonde, Jackson Square, the Aquarium, the Insectarium, a rooftop pool, and the Audubon Zoo. Best of all, we all got to play with our honorary family Aunt Denise, Uncle Kyle, Clare, and anticipated baby. It was a wonderful, fun-filled trip. However, I know it would never have been as huge of a success without our dear friends. Hotel rooms and children were not made for one another. I will post pics later that will speak for themselves and be sure to ask the girls about their adventures next time you see them.

Heads up for kids in grades 3-5. It is Pine Cove time again for church camp (First Bossier). I am very excited that Cathy is with us and is willing to stay with Rebecca. That's right - look out - I'm coming along this time! I hope all of you will consider coming and enjoying this with friends in Christ.

Wednesday, September 24, 2008

Rebecca

Rebecca is having a seizure that causes her head to jerk side to side. It is painful for her.

Please continue to pray for her.