Update and Request

Rebecca is about the same. She is having seizures, but she is able to rest when she is medicated. We have to make a decision on a medicine change.

Please go to http://www.youtube.com/watch?v=vvDsIs0aeYI for our video prayer request.

We have to give her a medicine that will cause her to be relaxed all the time and we most likely will lose any small steps that we have gained in strength, but it will help her muscle tone by making it less rigid. This is hard for us as parents to decide. She has no control over her muscles and basically is a quadriplegic, however, she is not paralyzed. This means that although she has no control over her muscles, she feels them. It hard to imagine this state, but once you wrap your mind around it its only more painful. We are meeting with the pediatric neurologist tomorrow and we will discuss treatment plans. Please pray for us.

Our OT has suggested several appliances to help Rebecca. Her little legs are starting to remain rigid and crossed at the calves. This makes it very hard to change her diaper, but I am not sure if pain causes the rigidity or if pain is caused when you try to relieve the stiffness. So hopefully a specially designed chair and wheel chair will help her. She has no control over her muscles, so we will have to basically strap her in the chair at various points of her body, starting with her head and ending with her feet. Her mouth will need a bite guard because she has a new kind of seizure that causes her to bite down and grind her teeth together. She only has four. Her feet, we are told, will need removable casts that will have to be monitored for blisters and sores. Please pray for her during this time.

This has been a tough week. Elizabeth started kindergarten this week and she impressed her teacher by doing math problems in her head and saying her alphabet backwards. She is dressed and waiting for the big girl bus before day break. This is going to be a fun year for her.

Katherine is restarting piano lessons and wants to learn how to play the guitar. She is enjoying being a big sister to Elizabeth at school.


Thanks